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Friend of Tortoise Exclusive

Why do so many people with autism die young?

Why do so many people with autism die young?

This event is exclusive to Friends of Tortoise

This is a newsroom ThinkIn. In-person and digital only tickets are available. 

Autistic adults with a learning disability are 40 times more likely to die prematurely (most commonly from epilepsy), and 9 times more likely to die from suicide. The UK’s largest study yet into the condition, the Spectrum 10k study, is gathering data to investigate why conditions like epilepsy are most common in people with autism, and to explore ways to improve their wellbeing. But autistic adults are calling for the study to be halted, fearing it could lead to a ‘screening’ test, as is commonly offered to pregnant women for Down’s Syndrome. Public awareness of issues relating to neurodiversity in general has improved in recent years, but has all that awareness translated into meaningful change, especially in terms of medical treatment, for autistic people and their families?  





Illustration: Charlotte Ager


editor and invited experts

Liz Moseley
Members’ Editor

James Cusack
Chief Executive, Autistica

Jolanta Lasota
Chief Executive Officer, Ambitious About Autism

Marie Van Herteryck
Self-Advocate and Co-Founder of Neuro Diverse Self Advocacy (NDSA)